Literature Review: Patient Engagement in Clinical Trials

Dec 17, 2020Clinical, Patient Participation in Clinical Trials, Regulatory Decision

Patient Introduction

As the field of patient engagement in medical product development continues to expand, it can be difficult to find useful resources and materials in this area. MDIC undertook a comprehensive literature review in 2019 and 2020 to compile the most relevant information in one place. The listed information is a representative snapshot of activities and resources within the evolving field of patient engagement in clinical research. This document can be useful to patients who are interested in deepening their knowledge about this field.


MDIC undertook a detailed literature review in 2019 and 2020 to compile a streamlined listing of resources pertaining to patient engagement in medical product development. This Literature Review reflects a broad scan of publicly available information about relevant organizations, initiatives, materials, and publications relating to incorporation of patient input in clinical development activities. While this summary is up-to-date as of December 2020, it should not be viewed as exhaustive given how quickly the field is evolving. New organizations, resources, and publications are being developed and launched continually, so MDIC will regularly update the information to ensure its completeness and relevance over time.